Arend Tibben
Emeritus hoogleraar Psychologie van de klinische genetica
- Naam
- Prof.dr. A. Tibben
- Telefoon
- +31 71 526 6068
- a.tibben@lumc.nl
De ontwikkelingen in de humane genetica bieden voor mij als medisch psycholoog/psychotherapeut indrukwekkende vergezichten. Eindelijk - na generaties - gloort voor risicodragers voor de ziekte van Huntington, en andere tot nu toe onbehandelbare hersenziekten, enig toekomstperspectief. Predictieve DNA-diagnostiek geeft mogelijkheden de eigen toekomst te dirigeren. Hoop is niet alleen meer een illusie. Huntington is een fascinerend model voor de multidisciplinaire bestudering van erfelijke later in het leven optredende ziekten. We kunnen nu inzicht krijgen in de ontwikkeling van de persoonlijkheid onder invloed van zowel de erfelijke constitutie als de omgeving. Hadden ooit eerder de fundamentele, medische en sociale wetenschappen zo'n gemeenschappelijk onderzoeksterrein?
Emeritus hoogleraar Psychologie van de klinische genetica
- Faculteit Geneeskunde
- Divisie 4
- Klinische Genetica
- Tibben, A.; Dondorp, W.; Cornelis, C.; Knoers, N.; Brilstra, E.; Summeren, M. van & Bolt, I. (2021), Parents, their children, whole exome sequencing and unsolicited findings, European Journal of Human Genetics 29.
- Dondorp, W.; Bolt, I.; Tibben, A.; Wert, G. de & Summeren, M. van (2021), 'We Should View Him as an Individual': The Role of the Child's Future Autonomy in Shared Decision-Making About Unsolicited Findings in Pediatric Exome Sequencing, Health Care Analysis.
- Steen, S.L. van der; Houtman, D.; Bakkeren, I.M.; Galjaard, R.J.H.; Polak, M.G.; Busschbach, J.J.; Tibben, A. & Riedijk, S.R. (2019), Offering a choice between NIPT and invasive PND in prenatal genetic counseling: the impact of clinician characteristics on patients' test uptake, European Journal of Human Genetics 27(2): 235-243.
- Tibben, A.; Dondorp, W.J.; Wert, G.M. de; Die-Smulders, C.E. de; Losekoot, M. & Bijlsma, E.K. (2019), Reply to Oliver W Quarrell et al.: "Letter in response to Tibben et al., Risk Assessment for Huntington's Disease for (Future) Offspring Requires Offering Preconceptional CAG Analysis to Both Partners".
- Tibben, A.; Dondorp, W.J.; Wert, G.M. de; Die-Smulders, C.E. de; Losekoot, M. & Bijlsma, E.K. (2019), Risk Assessment for Huntington's Disease for (Future) Offspring Requires Offering Preconceptional CAG Analysis to Both Partners, Journal of Huntington's Disease 8(1): 71-78.
- Cohn-Hokke, P.E.; Swieten, J.C. van; Pijnenburg, Y.A.L.; Tibben, A.; Meijers-Heijboer, H. & Kievit, A. (2018), The Effect of Predictive Testing in Adult-Onset Neurodegenerative Diseases on Social and Personal Life, Journal of Genetic Counseling 27(4): 947-954.
- Gietel-Habets, J.J.G.; Die-Smulders, C.E.M. de; Derks-Smeets, I.A.P.; Tibben, A.; Tjan-Heijnen, V.C.G.; Golde, R. van; Gomez-Garcia, E. & Osch, L.A.D.M. van (2018), Support needs of couples with hereditary breast and ovarian cancer during reproductive decision making, Psycho-Oncology 27(7): 1795-1801.
- Peay, H.L.; Biesecker, B.B.; Wilfond, B.S.; Jarecki, J.; Umstead, K.L.; Escolar, D.M. & Tibben, A. (2018), Barriers and facilitators to clinical trial participation among parents of children with pediatric neuromuscular disorders, Clinical Trials 15(2): 139-148.
- Steen, S.L. van der; Bunnik, E.M.; Polak, M.G.; Diderich, K.E.M.; Verhagen-Visser, J.; Govaerts, L.C.P.; Joosten, M.; Knapen, M.F.C.M.; Go, A.T.J.I.; Opstal, D. van; Srebniak, M.I.; Galjaard, R.J.H.; Tibben, A. & Riedijk, S.R. (2018), Choosing between Higher and Lower Resolution Microarrays: do Pregnant Women Have Sufficient Knowledge to Make Informed Choices Consistent with their Attitude?, Journal of Genetic Counseling 27(1): 85-94.
- Peay, H.L.; Meiser, B.; Kinnett, K. & Tibben, A. (2018), Psychosocial Needs and Facilitators of Mothers Caring for Children with Duchenne/Becker Muscular Dystrophy, Journal of Genetic Counseling 27(1): 197-203.
- Bouhnik, A.D.; N'Diaye, K.; Evans, D.G.; Harris, H.; Tibben, A.; Asperen, C. van; Schmidtke, J.; Nippert, I.; Mancini, J. & Julian-Reynier, C. (2017), Validation of a scale for assessing attitudes towards outcomes of genetic cancer testing among primary care providers and breast specialists, PLoS ONE 12(6).
- Gietel-Habets, J.J.G.; Die-Smulders, C.E.M. de; Derks-Smeets, I.A.P.; Tibben, A.; Tjan-Heijnen, V.C.G.; Golde, R. van; Gomez-Garcia, E.; Kets, C.M. & Osch, L.A.D.M. van (2017), Awareness and attitude regarding reproductive options of persons carrying a BRCA mutation and their partners, Human Reproduction 32(3): 588-597.
- Timman, R.; Gopie, J.P.; Brinkman, J.N.; Kleijne, A.; Seynaeve, C.; Menke-Pluymers, M.B.E.; Kuile, M.M. ter; Tibben, A. & Mureau, M.A.M. (2017), Most women recover from psychological distress after postoperative complications following implant or DIEP flap breast reconstruction: A prospective long-term follow-up study, PLoS ONE 12(3).
- Steen, S.L. van der; Riedijk, S.R.; Verhagen-Visser, J.; Govaerts, L.C.P.; Srebniak, M.I.; Opstal, D. van; Joosten, M.; Knapen, M.F.C.M.; Tibben, A.; Diderich, K.E.M. & Galjaard, R.J.H. (2016), The Psychological Impact of Prenatal Diagnosis and Disclosure of Susceptibility Loci: First Impressions of Parents' Experiences, Journal of Genetic Counseling 25(6): 1227-1234.
- Cohn-Hokke, P.; Swieten, J. van; Tibben, A.; Meijers-Heijboer, H. & Kievit, A. (2016), Effect of predictive testing in adult onset neurodegenerative diseases on social and personal life - a pilot study, Journal of Neurochemistry 138: 318-318.
- Peay, H.L.; Meiser, B.; Kinnett, K.; Furlong, P.; Porter, K. & Tibben, A. (2016), Mothers' psychological adaptation to Duchenne/Becker muscular dystrophy, European Journal of Human Genetics 24(5): 633-637.
- Peay, H.L.; Scharff, H.; Tibben, A.; Wilfond, B.; Bowie, J.; Johnson, J.; Nagaraju, K.; Escolar, D.; Piacentino, J. & Biesecker, B.B. (2016), "Watching time tick by...": Decision making for Duchenne muscular dystrophy trials, Contemporary Clinical Trials 46: 1-6.
- Meer, L.B. van der; Duijn, E. van; Giltay, E. & Tibben, A. (2015), Do Attachment Style and Emotion Regulation Strategies Indicate Distress in Predictive Testing?, Journal of Genetic Counseling 24(5): 862-871.
- Dondorp, W.; Wert, G. de; Bombard, Y.; Bianchi, D.W.; Bergmann, C.; Borry, P.; Chitty, L.S.; Fellmann, F.; Forzano, F.; Hall, A.; Henneman, L.; Howard, H.C.; Lucassen, A.; Ormond, K.; Peterlin, B.; Radojkovic, D.; Rogowski, W.; Soller, M.; Tibben, A.; Tranebjaerg, L.; , C.G. van el; Cornel, M.C.; European Soc Human Genetics & American Soc Human Genetics (2015), Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening, European Journal of Human Genetics 23(11): 1438-1450.
- Brinkman, J.N.; Timman, R.; Gopie, J.P.; Kleijne, A.; Tibben, A. & Mureau, M.A.M. (2015), Aesthetic outcome after implant and DIEP flap breast reconstruction: An exploratory, prospective comparison of 25 cases, Journal of Plastic, Reconstructive and Aesthetic Surgery 68(7): 1018-1019.
- Steen, S.L. van der; Diderich, K.E.M.; Riedijk, S.R.; Verhagen-Visser, J.; Govaerts, L.C.P.; Joosten, M.; Knapen, M.F.C.M.; Opstal, D. van; Srebniak, M.I.; Tibben, A. & Galjaard, R.J.H. (2015), Pregnant couples at increased risk for common aneuploidies choose maximal information from invasive genetic testing, Clinical Genetics 88(1): 25-31.
- Julian-Reynier, C.; Bouhnik, A.D.; Evans, D.G.; Harris, H.; Asperen, C.J. van; Tibben, A.; Schmidtke, J. & Nippert, I. (2015), General Practitioners and Breast Surgeons in France, Germany, Netherlands and the UK show variable breast cancer risk communication profiles, BMC Cancer 15.
- Meer, L. van der; Duijn, E. van; Wolterbeek, R. & Tibben, A. (2014), Offspring of a Parent With Genetic Disease: Childhood Experiences and Adult Psychological Characteristics, Health Psychology 33(12): 1445-1453.
- Booij, S.J.; Tibben, A.; Engberts, D.P.; Marinus, J. & Roos, R.A.C. (2014), Thinking about the end of life: a common issue for patients with Huntington's disease, Journal of Neurology 261(11): 2184-2191.
- Derks-Smeets, I.A.P.; Gietel-Habets, J.J.G.; Tibben, A.; Tjan-Heijnen, V.C.G.; Meijer-Hoogeveen, M.; Geraedts, J.P.M.; Golde, R. van; Gomez-Garcia, E.; Bogaart, E. van den; Hooijdonk, M. van; Die-Smulders, C.E.M. de & Osch, L.A.D.M. van (2014), Decision-making on preimplantation genetic diagnosis and prenatal diagnosis: a challenge for couples with hereditary breast and ovarian cancer, Human Reproduction 29(5): 1103-1112.
- Peay, H.L.; Tibben, A.; Fisher, T.; Brenna, E. & Biesecker, B.B. (2014), Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy, Clinical Trials 11(1): 77-85.
- Gopie, J.P.; Kuile, M.M. ter; Timman, R.; Mureau, M.A.M. & Tibben, A. (2014), Impact of delayed implant and DIEP flap breast reconstruction on body image and sexual satisfaction: a prospective follow-up study, Psycho-Oncology 23(1): 100-107.
- Booij, S.J.; Engberts, D.P.; Rodig, V.; Tibben, A. & Roos, R.A.C. (2013), A plea for end-of-life discussions with patients suffering from Huntington's disease: the role of the physician, Journal of Medical Ethics 39(10): 621-624.
- Heijer, M. den; Asperen, C.J. van; Harris, H.; Nippert, I.; Schmidtke, J.; Bouhnik, A.D.; Julian-Reynier, C.; Evans, D.G. & Tibben, A. (2013), International variation in physicians' attitudes towards prophylactic mastectomy - Comparison between France, Germany, the Netherlands and the United Kingdom, European Journal of Cancer 49(13): 2798-2805.
- Menko, F.H.; Aalfs, C.M.; Henneman, L.; Stol, Y.; Wijdenes, M.; Otten, E.; Ploegmakers, M.M.J.; Legemaate, J.; Smets, E.M.A.; Wert, G.M.W.R. de & Tibben, A. (2013), Informing family members of individuals with Lynch syndrome: a guideline for clinical geneticists, Familial Cancer 12(2): 319-324.
- Die-Smulders, C.E.M. de; Wert, G.M.W.R. de; Liebaers, I.; Tibben, A. & Evers-Kiebooms, G. (2013), Reproductive options for prospective parents in families with Huntingtons disease: clinical, psychological and ethical reflections, Human Reproduction Update 19(3): 304-315.
- Hennink, S.D.; Hofland, N.; Gopie, J.P.; Kaa, C. van der; Koning, K. de; Nielsen, M.; Tops, C.; Morreau, H.; Cappel, W.H.D.T.N.; Langers, A.M.J.; Hardwick, J.C.; Gaarenstroom, K.N.; Tollenaar, R.A.; Veenendaal, R.A.; Tibben, A.; Wijnen, J.; Heck, M. van; Asperen, C. van; Roukema, A.J.; Hommes, D.W.; Hes, F.J. & Vasen, H.F.A. (2013), Value-based healthcare in Lynch syndrome, Familial Cancer 12(2): 347-354.
- Skirton, H.; Goldsmith, L.; Jackson, L. & Tibben, A. (2013), Quality in genetic counselling for presymptomatic testing - clinical guidelines for practice across the range of genetic conditions., European Journal of Human Genetics 21(3): 256-60.
- MacLeod, R.; Tibben, A.; Frontali, M.; Evers-Kiebooms, G.; Jones, A.; Martinez-Descales, A.; Roos, R.A.; Editorial Comm & European Huntington Dis Network (2013), Recommendations for the predictive genetic test in Huntington's disease.
- Booij, S.J.; Engberts, D.P.; Tibben, A. & Roos, R.A.C. (2013), Euthanasia and physician-assisted suicide in Huntington's disease in The Netherlands., International Psychogeriatrics 25(2): 339-40.
- Rij, M.C. van; Die-Smulders, C. de; Bijlsma, E.K.; Wert, G.M.W.R. de; Geraedts, J.P.; Roos, R.A.C. & Tibben, A. (2013), Evaluation of exclusion prenatal and exclusion preimplantation genetic diagnosis for Huntington's disease in the Netherlands.
- Die-Smulders, C.E.M. de; Wert, G.M.W.R. de; Liebaers, I.; Tibben, A. & Evers-Kiebooms, G. (2013), Reproductive options for prospective parents in families with Huntington's disease: clinical, psychological and ethical reflections., Human Reproduction Update.
- Hens, K.; , C.E. van el; Borry, P.; Cambon-Thomsen, A.; Cornel, M.C.; Forzano, F.; Lucassen, A.; Patch, C.; Tranebjaerg, L.; Vermeulen, E.; Salvaterra, E.; Tibben, A.; Dierickx, K. & European Soc Human Genetics (2013), Developing a policy for paediatric biobanks: principles for good practice., European Journal of Human Genetics 21(1): 2-7.
- Rij, M.C. van; Gans, P.A.M.D.; Aalfs, C.M.; Elting, M.; Ippel, P.F.; Maat-Kievit, J.A.; Vermeer, S.; Verschuuren-Bemelmans, C.C.; Belzen, M.J. van; Belfroid, R.D.M.; Losekoot, M.; Geraedts, J.P.M.; Roos, R.A.C.; Tibben, A.; Die-Smulders, C.E.M. de & Bijlsma, E.K. (2013), Prenatal testing for Huntington's disease in The Netherlands from 1998 to 2008.
- Booij, S.J.; Engberts, D.P.; Rodig, V.; Tibben, A. & Roos, R.A.C. (2012), A plea for end-of-life discussions with patients suffering from Huntington's disease: the role of the physician., Journal of Medical Ethics.
- Gopie, J.P.; Mureau, M.A.M.; Seynaeve, C.; Kuile, M.M. ter; Menke-Pluymers, M.B.E.; Timman, R. & Tibben, A. (2012), Body image issues after bilateral prophylactic mastectomy with breast reconstruction in healthy women at risk for hereditary breast cancer., Familial Cancer.
- Branstrom, R.; Kasparian, N.A.; Affleck, P.; Tibben, A.; Chang, Y.M.; Azizi, E.; Baron-Epel, O.; Bergman, W.; Chan, M.; Davies, J.; Ingvar, C.; Kanetsky, P.A.; Leeuwen, E. van; Olsson, H.; Gruis, N.A.; Brandberg, Y. & Newton-Bishop, J. (2012), Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma, European Journal of Cancer 48(16): 3052-3062.
- Kasparian, N.A.; Branstrom, R.; Chang, Y.M.; Affleck, P.; Aspinwall, L.G.; Tibben, A.; Azizi, E.; Baron-Epel, O.; Battistuzzi, L.; Bruno, W.; Chan, M.; Cuellar, F.; Debniak, T.; Pjanova, D.; Ertmanski, S.; Figl, A.; Gonzalez, M.; Hayward, N.K.; Hocevar, M.; Kanetsky, P.A.; Leachman, S.; Bergman, W.; Heisele, O.; Palmer, J.; Peric, B.; Puig, S.; Schadendorf, D.; Grius, N.A.; Newton-Bishop, J.; Brandberg, Y. & Melanoma Genetics Consortium GenoM (2012), Skin Examination Behavior The Role of Melanoma History, Skin Type, Psychosocial Factors, and Region of Residence in Determining Clinical and Self-conducted Skin Examination, Archives of Dermatology -Chicago- 148(10): 1142-1151.
- Kasparian, N.A.; Branstrom, R.; Chang, Y.M.; Affleck, P.; Aspinwall, L.G.; Tibben, A.; Azizi, E.; Baron-Epel, O.; Battistuzzi, L.; Bruno, W.; Chan, M.; Cuellar, F.; Debniak, T.; Pjanova, D.; Ertmanski, S.; Figl, A.; Gonzalez, M.; Hayward, N.K.; Hocevar, M.; Kanetsky, P.A.; Leachman, S.; Bergman, W.; Heisele, O.; Palmer, J.; Peric, B.; Puig, S.; Schadendorf, D.; Grius, N.A.; Newton-Bishop, J.; Brandberg, Y. & Melanoma Genetics Consortium GenoM (2012), Skin examination behavior: the role of melanoma history, skin type, psychosocial factors, and region of residence in determining clinical and self-conducted skin examination., Archives of Dermatology -Chicago- 148(10): 1142-51.
- Gopie, J.P.; Vasen, H.F.A. & Tibben, A. (2012), Surveillance for hereditary cancer: Does the benefit outweigh the psychological burden?-A systematic review.
- Gopie, J.P.; Vasen, H.F.A. & Tibben, A. (2012), Surveillance for hereditary cancer: does the benefit outweigh the psychological burden?--A systematic review., Critical Reviews in Oncology/Hematology 83(3): 329-40.
- Riedijk S, Oudesluijs G & Tibben A (2012), Psychosocial aspects of preconception consultation in primary care: lessons from our experience in clinical genetics., Journal of Community Genetics 3(3): 213-9.
- Vos, J.; Menko, F.H.; Oosterwijk, J.C.; Asperen, C.J. van; Stiggelbout, A.M. & Tibben, A. (2012), Genetic counseling does not fulfill the counselees' need for certainty in hereditary breast/ovarian cancer families: an explorative assessment., Psycho-Oncology.
- Heijer, M. den; Seynaeve, C.; Timman, R.; Duivenvoorden, H.J.; Vanheusden, K.; Tilanus-Linthorst, M.; Menke-Pluijmers, M.B.E. & Tibben, A. (2012), Body image and psychological distress after prophylactic mastectomy and breast reconstruction in genetically predisposed women: A prospective long-term follow-up study, European Journal of Cancer 48(9): 1263-1268.
- Vos, J.; Asperen, C.J. van; Oosterwijk, J.C.; Menko, F.H.; Collee, M.J.; Garcia, E.G. & Tibben, A. (2012), The counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: not only psychopathology matters., Psycho-Oncology.
- Heijer, M. den; Seynaeve, C.; Vanheusden, K.; Timman, R.; Duivenvoorden, H.J.; Tilanus-Linthorst, M.; Menke-Pluijmers, M.B.E. & Tibben, A. (2012), Long-term psychological distress in women at risk for hereditary breast cancer adhering to regular surveillance: a risk profile., Psycho-Oncology.
- Meer, L.B. van der; Duijn, E. van; Wolterbeek, R. & Tibben, A. (2012), Adverse childhood experiences of persons at risk for Huntington's disease or BRCA1/2 hereditary breast/ovarian cancer.
- Vos, J.; Gomez-Garcia, E.; Oosterwijk, J.C.; Menko, F.H.; Stoel, R.D.; Asperen, C.J. van; Jansen, A.M.; Stiggelbout, A.M. & Tibben, A. (2012), Opening the psychological black box in genetic counseling. The psychological impact of DNA testing is predicted by the counselees' perception, the medical impact by the pathogenic or uninformative BRCA1/2-result, Psycho-Oncology 21(1): 29-42.
- Vos, J.; Oosterwijk, J.C.; Gomez-Garcia, E.; Menko, F.H.; Collee, M.J.; Asperen, C.J. van; Jansen, A.M.; Stiggelbout, A.M. & Tibben, A. (2011), Exploring the short-term impact of DNA-testing in breast cancer patients: The counselees' perception matters, but the actual BRCA1/2 result does not.
- Heijer, M. den; Seynaeve, C.; Vanheusden, K.; Duivenvoorden, H.J.; Vos, J.; Bartels, C.C.M.; Menke-Pluymers, M.B.E. & Tibben, A. (2011), The contribution of self-esteem and self-concept in psychological distress in women at risk of hereditary breast cancer, Psycho-Oncology 20(11): 1170-1175.
- Gopie, J.P.; Timman, R.; Hilhorst, M.T.; Hofer, S.O.P.; Mureau, M.A.M. & Tibben, A. (2011), The short-term psychological impact of complications after breast reconstruction., Psycho-Oncology.
- Vos, J.; Stiggelbout, A.M.; Oosterwijk, J.; Gomez-Garcia, E.; Menko, F.; Collee, J.M.; Asperen, C.J. van & Tibben, A. (2011), A counselee-oriented perspective on risk communication in genetic counseling: Explaining the inaccuracy of the counselees' risk perception shortly after BRCA1/2 test result disclosure, Genetics in Medicine 13(9): 800-811.
- Harris, H.; Nippert, I.; Julian-Reynier, C.; Schmidtke, J.; Asperen, C. van; Gadzicki, D.; Tibben, A. & Evans, D.G. (2011), Familial breast cancer: is it time to move from a reactive to a proactive role?, Familial Cancer 10(3): 501-503.
- Gopie, J.P.; Timman, R.; Hilhorst, M.T.; Hofer, S.O.P.; Mureau, M.A.M. & Tibben, A. (2011), Information-seeking behaviour and coping style of women opting for either implant or DIEP-flap breast reconstruction, Journal of Plastic, Reconstructive and Aesthetic Surgery 64(9): 1167-1173.
- Gopie, J.P.; Hilhorst, M.T.; Kleijne, A.; Timman, R.; Menke-Pluymers, M.B.E.; Hofer, S.O.P.; Mureau, M.A.M. & Tibben, A. (2011), Women's motives to opt for either implant or DIEP-flap breast reconstruction, Journal of Plastic, Reconstructive and Aesthetic Surgery 64(8): 1062-1067.
- Vos, J.; Jansen, A.M.; Menko, F.; Asperen, C.J. van; Stiggelbout, A.M. & Tibben, A. (2011), Family communication matters: The impact of telling relatives about unclassified variants and uninformative DNA-test results, Genetics in Medicine 13(4): 333-341.
- Vos, J.; Menko, F.; Jansen, A.M.; Asperen, C.J. van; Stiggelbout, A.M. & Tibben, A. (2011), A whisper-game perspective on the family communication of DNA-test results: a retrospective study on the communication process of BRCA1/2-test results between proband and relatives., Familial Cancer 10(1): 87-96.
- Helderman-van den Enden, A.T.J.M.; Bergen, J.C. van den; Breuning, M.H.; Verschuuren, J.J.G.M.; Tibben, A.; Bakker, E. & Ginjaar, H.B. (2011), Duchenne/Becker muscular dystrophy in the family: have potential carriers been tested at a molecular level?
- Vos, J.; Oosterwijk, J.C.; Gomez-Garcia, E.; Menko, F.H.; Jansen, A.M.; Stoel, R.D.; Asperen, C.J. van; Tibben, A. & Stiggelbout, A.M. (2011), Perceiving cancer-risks and heredity-likelihood in genetic-counseling: how counselees recall and interpret BRCA1/2-test results, Clinical Genetics 79(3): 207-218.
- Heijer, M. den; Vanheusden, K.; Seynaeve, C.; Duivenvoorden, H.J.; Dooren, S. van; Bartels, K.C.M.; Menke-Pluijmers, M.B. & Tibben, A. (2010), Distress in partners of high-risk women undergoing breast cancer surveillance, Journal of Men's Health 7(4): 413-419.
- Elderen, T. van; Mutlu, D.; Karstanje, J.; Passchier, J.; Tibben, A. & Duivenvoorden, H.J. (2010), Turkish Female Immigrants' Intentions to Participate in Preconception Carrier Screening for Hemoglobinopathies in the Netherlands: An Empirical Study, Public Health Genomics 13(7-8): 415-423.
- Timman, R.; Tibben, A. & Wintzen, A.R. (2010), MYOTONIC DYSTROPHY THE BURDEN FOR PATIENTS AND THEIR PARTNERS, Journal of Rehabilitation Medicine 42(9): 823-830.
- Vos, J.; Oosterwijk, J.C.; Gomez-Garcia, E.; Menko, F.H.; Jansen, A.M.; Stoel, R.D.; Asperen, C.J. van; Tibben, A. & Stiggelbout, A.M. (2010), Perceiving cancer-risks and heredity-likelihood in genetic-counseling: how counselees recall and interpret BRCA 1/2-test results.
- Branstrom, R.; Kasparian, N.A.; Chang, Y.M.; Affleck, P.; Tibben, A.; Aspinwall, L.G.; Azizi, E.; Baron-Epel, O.; Battistuzzi, L.; Bergman, W.; Bruno, W.; Chan, M.; Cuellar, F.; Debniak, T.; Pjanova, D.; Ertmanski, S.; Figl, A.; Gonzalez, M.; Hayward, N.K.; Hocevar, M.; Kanetsky, P.A.; Leachman, S.A.; Heisele, O.; Palmer, J.; Peric, B.; Puig, S.; Schadendorf, D.; Gruis, N.A.; Newton-Bishop, J. & Brandberg, Y. (2010), Predictors of Sun Protection Behaviors and Severe Sunburn in an International Online Study, Cancer Epidemiology, Biomarkers and Prevention 19(9): 2199-2210.
- Branstrom, R.; Chang, Y.M.; Kasparian, N.; Affleck, P.; Tibben, A.; Aspinwall, L.G.; Azizi, E.; Baron-Epel, O.; Battistuzzi, L.; Bruno, W.; Chan, M.; Cuellar, F.; Debniak, T.; Pjanova, D.; Ertmanski, S.; Figl, A.; Gonzalez, M.; Hayward, N.K.; Hocevar, M.; Kanetsky, P.A.; Leaf, S.L.; Nieuwpoort, F.A. van; Heisele, O.; Palmer, J.; Peric, B.; Puig, S.; Ruffin, A.D.; Schadendorf, D.; Gruis, N.A.; Brandberg, Y. & Newton-Bishop, J. (2010), Melanoma risk factors, perceived threat and intentional tanning: an international online survey, European Journal of Cancer Prevention 19(3): 216-226.
- Forzano, F.; Borry, P.; Cambon-Thomsen, A.; Hodgson, S.V.; Tibben, A.; Vries, P. de; , C. van el & Cornel, M. (2010), Italian appeal court: a genetic predisposition to commit murder?, European Journal of Human Genetics 18(5): 519-521.
- Damen, T.H.C.; Timman, R.; Kunst, E.H.; Gopie, J.P.; Bresser, P.J.C.; Seynaeve, C.; Menke-Pluijmers, M.B.; Mureau, M.A.M.; Hofer, S.O.P. & Tibben, A. (2010), High satisfaction rates in women after DIEP flap breast reconstruction, Journal of Plastic, Reconstructive and Aesthetic Surgery 63(1): 93-100.
- Heijer, M. den; Seynaeve, C.; Vanheusden, K.; Duivenvoorden, H.J.; Bartels, C.C.M.; Menke-Pluymers, M.B.E. & Tibben, A. (2010), Psychological distress in women at risk for hereditary breast cancer: the role of family communication and perceived social support., Psycho-Oncology.
- Heijer, M. den; Seynaeve, C.; Vanheusden, K.; Duivenvoorden, H.J.; Vos, J.; Bartels, C.C.M.; Menke-Pluymers, M.B.E. & Tibben, A. (2010), The contribution of self-esteem and self-concept in psychological distress in women at risk of hereditary breast cancer., Psycho-Oncology.
- Heijer, M. den; Vos, J.; Seynaeve, C.; Vanheusden, K.; Duivenvoorden, H.J.; Tilanus-Linthorst, M.; Menke-Pluymers, M.B.E. & Tibben, A. (2010), The impact of social and personal resources on psychological distress in women at risk for hereditary breast cancer., Psycho-Oncology.
- Elderen, T. van; Mutlu, D.; Karstanje, J.; Passchier, J.; Tibben, A. & Duivenvoorden, H.J. (2010), Turkish female immigrants' intentions to participate in preconception carrier screening for hemoglobinopathies in the Netherlands: an empirical study.
- Riedijk S, Duivenvoorden H, Van Swieten J, Niermeijer M & Tibben A (2009), Sense of Competence in a Dutch Sample of Informal Caregivers of Frontotemporal Dementia Patients, Dementia and Geriatric Cognitive Disorders 27(4): 337-343.
- Vos J, van Asperen CJ, Wijnen JT, Stiggelbout AM & Tibben A (2009), Disentangling the Babylonian speech confusion in genetic counseling: An analysis of the reliability and validity of the nomenclature for BRCA1/2 DNA-test results other than pathogenic, Genetics in Medicine 11(10): 742-749.
- Veenhuizen RB & Tibben A (2009), Coordinated multidisciplinary care for Huntington's disease. An outpatient department, Brain Research Bulletin 80(4-5): 192-195.
- Riedijk SR, Niermeijer MFN, Dooijes D & Tibben A (2009), A Decade of Genetic Counseling in Frontotemporal Dementia Affected Families: Few Counseling Requests and much Familial Opposition to Testing, Journal of Genetic Counseling 18(4): 350-356.
- Berghmans R, de Jong J, Tibben A & de Wert G (2009), On the biomedicalization of alcoholism, Theoretical Medicine and Bioethics 30(4): 311-321.
- van Duijn E, Kingma EM, Timman R, Zitman FG, Tibben A, Roos RAC & van der Mast RC (2008), Cross-Sectional Study on Prevalences of Psychiatric Disorders in Mutation Carriers of Huntington's Disease Compared With Mutation-Negative First-Degree Relatives, Journal of Clinical Psychiatry 69(11).
- van Dijk S, Otten W, Tollenaar RAEM, van Asperen CJ & Tibben A (2008), Putting it all behind: long-term psychological impact of an inconclusive DNA test result for breast cancer, Genetics in Medicine 10(10).
- de Snoo FA, Rledijk SR, van Mil AM, Bergman W, ter Huurne JAC, Timman R, Bertina W, Gruis NA, Vasen HFA, van Haeringen A, Breuning MH & Tibben A (2008), Genetic testing in familial melanoma: uptake and implications, Psycho-Oncology 17(8).
- Vos J, Otten W, van Asperen C, Jansen A, Menko F & Tibben A (2008), The counsellees' view of an unclassified variant in BRCA1/2: recall, interpretation, and impact on life, Psycho-Oncology 17(8).
- Timman R, Bonke B, Stijnen T, Tibben A & Maat-Kievit A (2008), Estimating decreased risks for Huntington disease without a test, European Journal of Epidemiology 23(4).
- Smets EMA, Stam MMH, Meulenkamp TM, van Langen IM, Wilde AAM, Wiegman A, de Wert GM & Tibben A (2008), Health-dated quality of life of children with a positive carrier status for inherited cardiovascular diseases, American Journal of Medical Genetics Part A 146A(6).
- Riedijk S, Duivenvoorden H, Rosso S, Van Swieten J, Niermeijer M & Tibben A (2008), Frontotemporal Dementia: Change of Familial Caregiver Burden and Partner Relation in a Dutch Cohort of 63 Patients, Dementia and Geriatric Cognitive Disorders 26(5).
- van Oostrom I, Meijers-Heijboer H, Duivenvoorden HJ, Broecker-Vriends AHJT, van Asperen CJ, Sijmons RH, Seynaeve C, Van Gool AR, Klijn JGM & Tibben A (2007), The common sense model of self-regulation and psychological adjustment to predictive genetic testing: a prospective study, Psycho-Oncology 16(12).
- Bresser PJC, Van Gool AR, Seynaeve C, Duivenvoorden HJ, Niermeijer MF, van Geel AN, Menke M, Klijn JGM & Tibben A (2007), Who is prone to high levels of distress after prophylactic mastectomy and/or salpingo-ovariectomy?, Annals of Oncology 18(10).
- Pieterse K, van Dooren S, Seynaeve C, Bartels CCM, Rijnsburger AJ, de Koning HJ, Klijn JGM, van Elderen T, Tibben A & Duivenvoorden HJ (2007), Passive coping and psychological distress in women adhering to regular breast cancer surveillance, Psycho-Oncology 16(9).
- van Oostrom I, Meijers-Heijboer H, Duivenvoorden HJ, Brocker-Vriends AHJT, van Asperen CJ, Sijmons RH, Seynaeve C, Van Gool AR, Klijn JGM, Riedijk SR, van Dooren S & Tibben A (2007), A prospective study of the impact of genetic susceptibility testing for BRCA1/2 or HNPCC on family relationships, Psycho-Oncology 16(4).
- Tibben A (2007), Predictive testing for Huntington's disease, Brain Research Bulletin 72(2-3).
- van Oostrom I, Meijers-Heijboer H, Duivenvoorden HJ, Brocker-Vriends AHJT, van Asperen CJ, Sijmons RH, Seynaeve C, Van Gool AR, Klijn JGM & Tibben A (2007), Comparison of individuals opting for BRCA1/2 or HNPCC genetic susceptibility testing with regard to coping, illness perceptions, illness experiences, family system characteristics and hereditary cancer distress, Patient Education and Counseling 65(1).
- van Oostrom I, Meijers-Heijboer H, Duivenvoorden HJ, Brocker-Vriends AHJT, van Asperen CJ, Sijmons RH, Seynaeve C, Van Gool AR, Klijn JGM & Tibben A (2007), Family system characteristics and psychological adjustment to cancer susceptibility genetic testing: a prospective study, Clinical Genetics 71(1).
- van Oostrom I, Meijers-Heijboer H, Duivenvoorden HJ, Brocker-Vriends AHJT, van Asperen CJ, Sijmons RH, Seynaeve C, Van Gool AR, Klijn JGM & Tibben A (2007), Prognostic factors for hereditary cancer distress six months after BRCA1/2 or HNPCC genetic susceptibility testing, European Journal of Cancer 43(1).
- Bresser PJC, Seynaeve C, Van Gool AR, Niermeijer MF, Duivenvoorden HJ, van Dooren S, van Geel AN, Menke-Pluijmers MB, Klijn JGM & Tibben A (2007), The course of distress in women at increased risk of breast and ovarian cancer due to an (identified) genetic susceptibility who opt for prophylactic mastectomy and/or salpingo-oophorectomy, European Journal of Cancer 43(1).
- Van der Meer L, Timman R, Trijsburg W, Duisterhof M, Erdman R, Van Elderen T & Tibben A (2006), Attachment in families with Huntington's disease - A paradigm in clinical genetics, Patient Education and Counseling 63(1-2).
- van Dijk S, Timmermans DRM, Meijers-Heijboer H, Tibben A, van Asperen CJ & Otten W (2006), Clinical characteristics affect the impact of an uninformative DNA test result: The course of worry and distress experienced by women who apply for genetic testing for breast cancer, Journal of Clinical Oncology 24(22).
- van Oostrom I, Meijers-Heijboer H, Duivenvoorden HJ, Brocker-Vriends AHJT, van Asperen CJ, Sijmons RH, Seynaeve C, Van Gool AR, Klijn JGM & Tibben A (2006), Experience of parental cancer in childhood is a risk factor for psychological distress during genetic cancer susceptibility testing, Annals of Oncology 17(7).
- Bresser PJC, Seynaeve C, Van Gool AR, Brekelmans CT, Meijers-Heijboer H, van Geel AN, Menke-Pluijmers MB, Duivenvoorden HJ, Klijn JGM & Tibben A (2006), Satisfaction with prophylactic mastectomy and breast reconstruction in genetically predisposed women, Plastic and Reconstructive Surgery 117(6).
- Bonke B, Tibben A, Lindhout D & Stijnen T (2006), Calculating risk changes after negative mutation test outcomes for autosomal dominant hereditary late-onset disorders, Heredity 96(3).
- Riedijk SR, De Vugt ME, Duivenvoorden HJ, Niermeijer MF, Van Swieten JC, Verhey FRJ & Tibben A (2006), Caregiver burden, health-related quality of life and coping in dementia caregivers: A comparison of frontotemporal dementia and Alzheimer's disease, Dementia and Geriatric Cognitive Disorders 22(5-6).
- de Vugt ME, Riedijk SR, Aalten P, Tibben A, van Swieten JC & Verhey FRJ (2006), Impact of behavioural problems on spousal caregivers: A comparison between Alzheimer's disease and frontotemporal dementia, Dementia and Geriatric Cognitive Disorders 22(1).
- Riedijk SR, De Snoo FA, Van Dijk S, Bergman W, Van Haeringen A, Silberg S, Van Elderen TMT & Tibben A (2005), Hereditary melanoma and predictive genetic testing: Why not?, Psycho-Oncology 14(9).
- van Dijk S, Otten W, Timmermans DRM, van Asperen CJ, Meijers-Heijboer H, Tibben A, Breuning MH & Kievit J (2005), What's the message? Interpretation of an uninformative BRCA1/2 test result for women at risk of familial breast cancer, Genetics in Medicine 7(4).
- van Dijk S, Otten W, van Asperen CJ, Timmermans DRM, Tibben A, Zoeteweij MW, Silberg S, Breuning MH & Kievit J (2004), Feeling at risk: How women interpret their familial breast cancer risk, American Journal of Medical Genetics Part A 131A(1).
- van Dooren S, Rijnsburger AJ, Seynaeve C, Duivenvoorden HJ, Essink-Bot ML, Tilanus-Linthorst MMA, de Koning HJ & Tibben A (2004), Psychological distress in women at increased risk for breast cancer: the role of risk perception, European Journal of Cancer 40(14).
- van Dijk S, van Asperen CJ, Jacobi CE, Vink GR, Tibben A, Breuning MH & Otten W (2004), Variants of uncertain clinical significance as a result of BRCA1/2 testing: Impact of an ambiguous breast cancer risk message, Genetic Testing 8(3).
- Rijnsburger AJ, Essink-Bot ML, van Dooren S, Borsboom GJJM, Seynaeve C, Bartels CCM, Klijn JGM, Tibben A & de Koning HJ (2004), Impact of screening for breast cancer in high-risk women on health-related quality of life, British Journal of Cancer 91(1).
- Timman R, Roos R, Maat-Kievit A & Tibben A (2004), Adverse effects of predictive testing for Huntington disease underestimated: Long-term effects 7-10 years after the test, Health Psychology 23(2).
- Mourik JC, Rosso SM, Niermeijer MF, Duivenvoorden HJ, van Swieten JC & Tibben A (2004), Frontotemporal dementia: Behavioral symptoms and caregiver distress, Dementia and Geriatric Cognitive Disorders 18(3-4).
- van Oostrom I, Meijers-Heijboer H, Ladder LN, Duivenvoorden HJ, van Goal AR, Seynaeve C, van der Meer CA, Klijn JGM, van Geel BN, Burger CW, Wladimiroff JW & Tibben A (2003), Long-term psychological impact of carrying a BRCA1/2 mutation and prophylactic surgery: A 5-year follow-up study, Journal of Clinical Oncology 21(20).
- Timman R, Maat-Kievit A, Brouwer-DudokdeWit C, Zoeteweij M, Breuning MH & Tibben A (2003), Testing the test - Why pursue a better test for Huntington disease?, American Journal of Medical Genetics Part B: Neuropsychiatric Genetics 117B(1).
- Brouwer-DudokdeWit AC, Savenije A, Zoeteweij MW, Maat-Kievit A & Tibben A (2002), A hereditary disorder in the family and the family life cycle: Huntington disease as a paradigm, Family Process 41(4).
- Witjes-Ane MNW, Zwinderman AH, Tibben A, van Ommen GJB & Roos RAC (2002), Behavioural complaints in participants who underwent predictive testing for Huntington's disease, Journal of Medical Genetics 39(11).
- Wagner A, Tops C, Wijnen JT, Zwinderman K, van der Meer C, Kets M, Niermeijer MF, Klijn JGM, Tibben A, Vasen HFA & Meijers-Heijboer H (2002), Genetic testing in hereditary non-polyposis colorectal cancer families with a MSH2, MLH1, or MSH6 mutation, Journal of Medical Genetics 39(11).
- Bonke B, Tibben A, Lindhout D & Stijnen T (2002), Favourable mutation test outcomes for individuals at risk for Huntington disease change the perspectives of first-degree relatives, Human Genetics 111(3).
- Duisterhof M, Trijsburg RW, Niermeijer MF, Roos RAC & Tibben A (2001), Psychological studies in Huntington's disease: making up the balance, Journal of Medical Genetics 38(12).
- Lodder L, Frets PG, Trijsburg RW, Tibben A, Meijers-Heijboer EJ, Duivenvoorden HJ, Wagner A, van der Meer CA, Devilee P, Cornelisse CJ & Niermeijer MF (2001), Men at risk of being a mutation carrier for hereditary breast/ovarian cancer: an exploration of attitudes and psychological functioning during genetic testing, European Journal of Human Genetics 9(7).
- Roks G, Van Harskamp F, De Koning I, Cruts M, De Jonghe C, Kumar-Singh S, Tibben A, Tanghe H, Niermeijer MF, Hofman A, Van Swieten JC, Van Broeckhoven C & Van Duijn CM (2000), Presentation of amyloidosis in carriers of the codon 692 mutation in the amyloid precursor protein gene (APP692), Brain 123.
- de Boo GM, Tibben A, Hermans J, Jennekens-Schinkel A, Maat-Kievit A & Roos RAC (1999), Memory and learning are not impaired in presymptomatic individuals with an increased risk of Huntington's disease.
- Editor
- Voorzitter raad van Toezicht
- visiting professor
- Lid Raad van Toezicht
- Psychotherapeut