Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers
The article 'Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers' got published in Dementia. Dementia is an international peer reviewed journal that acts as a major forum for social research of direct relevance to improving the quality of life and quality of care for people with dementia and their families. The article is Open Access available.
- Natashe Lemos Dekker and Sascha R Bolt
- 14 January 2022
- Article in Dementia
Dementia is widely considered a progressive condition associated with changes in cognitive capacities, which promotes the idea that people with dementia need to anticipate end-of-life care preferences. There is a growing body of interventions meant to support advance care planning (ACP) for people with dementia and their families. However, a deeper understanding of their experiences and expectations regarding planning the end of life is needed to inform ethically sound and person-centered ACP. This study explores how end-of-life care planning for people with dementia is experienced and perceived in practice.